One of my favorite aspects of the Pitt Genetic counseling Program
is the wide array of clinical opportunities we receive during our rotations.
From cancer, pediatric, and prenatal genetics to more unique experiences like primary
care, we basically see it all. On top of that, each student has the opportunity
to choose an “optional” rotation which consists of an experience of her/his choice.
The Down syndrome community is near and dear to my heart and played a major
role in sparking my interest in genetics many years ago. I was therefore thrilled
when I had the privilege of completing my optional rotation earlier this summer
with the Down Syndrome Center of Western Pennsylvania.
The Down Syndrome Center of Western Pennsylvania works with
individuals with Down syndrome and their families by providing health care,
information, and other resources. The clinic works alongside other local and
national groups to provide specialty care and support for these families. A key
national organization is a non-profit called the National Down Syndrome
Congress. As luck would have it, the National Down Syndrome Congress was
hosting their Annual Convention in Pittsburgh during my optional rotation!
On the weekend of June 27th-30th, thousands
of people from all across the world gathered at the David L. Lawrence
Convention Center in Pittsburgh. Attendees included self-advocates with Down
syndrome, families, professionals, and other community members. The Annual
Convention is often described as a “giant family reunion” and I can attest to
the fact that it felt like exactly that.
I had the opportunity of attending the Convention as a volunteer
for the Youth & Adults Conference, which is an empowering experience for
individuals with Down syndrome aged 15 and older. The Youth & Adults
Conference consists of a packed schedule of special activities and events every
day. On my first day volunteering, I was assigned to a group of eight
self-advocates with Down syndrome. I spent the entire weekend with the group
participating in activities, attending workshops, and even going to dance
parties! I arrived at the Convention not knowing exactly what to expect and
left with eight new friends. This experience provided me with an invaluable
opportunity to interact with a truly special community of individuals. Reflecting
on the weekend ultimately allowed me to appreciate the importance of immersing myself
in the populations I will work with throughout my genetic counseling career. After
all, what initially presented itself as a fun weekend ultimately became one of
the most pivotal learning experiences I have had in the program thus far.
If you ever find yourself in a city hosting the National
Down Syndrome Congress Annual Convention, I highly recommend signing up for an
experience that I promise you will never forget. I just might have to take a
trip to New Orleans for the 48th Annual Convention in 2020!
Stephanie Betts, class of 2020
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